I'm frustrated. Hence the title. Isabella had a six months post diagnosis of celiac disease check up and she has gained weight and is feeling healthier, she isn't anemic anymore, but she's still getting unacceptable levels of gluten. So what do I do? Should I only buy whole foods and products from gluten free companies? I thought I was getting things down. I read labels but there is so much cross contamination that can be done in a food manufacturing plant. She wants to go to girls camp and youth conference for church this summer and I intend to let her go, but how much of a pain is this going to be? How risky is it going to be?
The other day we ate lunch at the only exclusively gluten free establishment I know of, Eleanor's Bakery. It was good, albeit expensive. We had these sandwiches on this cornmeal bread called arepas. We also had chips: Cheetos for Isabella and Doritos for me and Brent. These chips do not have gluten in them (I am becoming increasingly wary of food additives like MSG, however. Not because they contain gluten but because I think we should get away from artificial ingredients. We have a long way to go though.) These chips have also recently been changed on the Frito Lay website. They are produced in facilities that produce other products that contain gluten (like Sun Chips). They aren't on the much smaller list of products that have been tested to have less than 20 part per million (the acceptable level of gluten). I buy quite a few products that say gluten free on the label or have no gluten in the ingredients but also say they are produced in a facility that makes wheat containing ingredients or just says "may contain wheat". Like Heartland Gluten Free Pasta or Reese's Puffs cereal. I do that because it makes life easier and Isabella can have more options. But I guess I can't do that anymore. I realize I sound very whiny here. But this is my blog and I need to complain about how this is a pain in the butt once in a while. Especially when I have confirmation that while we are making progress, it's not good enough.
